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The POWER of prayer 4/5/2015
I
have been trying to get this written since Thursday. Yet, today on
Easter the title is a little more appropriate. There are many forms of
pray, from a very structured routine to grace to light and airy thoughts
during the day. Whichever way you give through the power of your heart
Archer knows, he feels the love we all have for him. There have been a
few times so far in his life when I know he was being upheld in many
prayers. The first time last May-June 2014, this is when we visited the
ER for a new type of seizure coming in clusters several times a day. It
was actually the Friday before my 1st Mothers Day. For mothers day we
needed to get out and so OF course we took a trip to our magical place
the Grasshopper Valley and Maverick Mountain! During this time Brandon
and I slowly began reaching out for support and sharing stories of our
journey with Archer. People began praying and holding him close to their
hearts, one particular day in June the seizures had almost stopped and I
thought we had broke thru without the medication it was truly an
amazing day, almost as if you could feel all the spirits around him
providing protection from the seizures. However the following next few
days the seizures came back with a vengeance doubling or tripling their
frequency. That was it if our MT neurologist was not going to get him
diagnosed I was going to load up and drive to Seattle until I got
answers. By now it was the middle of June before Archer was able to
receive medication. This particular medicine was a form of steroid
administered by shots in the leg for 30 days. Yes, momma was the one
poking her little 5 month old, precious baby boy, twice a day along with
4 other medications to counter-act the side effects. After 72 hours of
the shots the seizures stopped and have yet to return! He was so
uncomfortable, pumped full of medicine, he stopped smiling and laughing,
it was too uncomfortable to snuggle. These days seemed so long when I
marked out the 30-day dosage on the calendar. Holy moly those days are
gone and enough detail for you, yet this is really only the icing on
top. 
We again went to our magical place Maverick (btw, I wanted this to
be Archer's middle name, but Grandpa Orrin Jay won) over the 4th of July
holiday to get Archer out of the shocking fireworks, as we didn't want
anything to trigger the seizures beginning again. At camp we let the
little bug be nakey and take in the magic of nature, the sounds of
birds, the creaking trees, the fresh smell of the forest. He began to
giggle!! Our hearts were lifted and able to put the past into the past
and live in the moment. 
Fast forward to the last few weeks of March
2015, when the word about Archer spread like wild fire. Friends from far
away places, community members, the prayer chain began again and
uplifting Archer with the power of pray. Love is the most healing gift
you can give. These past few weeks his brain is showing us that the
connections and pathways are being forged. All in time it will come. He
decided to let us know that speech will not be an issue as his sweet
voice began praising the world with 'mamama'!! The picture at the left
is of him sitting up and away from back support. This is a big step for
our little guy as he has very low muscle tone and it takes a lot of
effort cognitively and physically to work together and hold himself up.
It is an eye opener to all the things that come so easily for some, are a
huge hurdle of others. May we all slow down and appreciate the small
treasures of life and each moment we have together and apart to spread
our love.
I
have been trying to get this written since Thursday. Yet, today on
Easter the title is a little more appropriate. There are many forms of
pray, from a very structured routine to grace to light and airy thoughts
during the day. Whichever way you give through the power of your heart
Archer knows, he feels the love we all have for him. There have been a
few times so far in his life when I know he was being upheld in many
prayers. The first time last May-June 2014, this is when we visited the
ER for a new type of seizure coming in clusters several times a day. It
was actually the Friday before my 1st Mothers Day. For mothers day we
needed to get out and so OF course we took a trip to our magical place
the Grasshopper Valley and Maverick Mountain! During this time Brandon
and I slowly began reaching out for support and sharing stories of our
journey with Archer. People began praying and holding him close to their
hearts, one particular day in June the seizures had almost stopped and I
thought we had broke thru without the medication it was truly an
amazing day, almost as if you could feel all the spirits around him
providing protection from the seizures. However the following next few
days the seizures came back with a vengeance doubling or tripling their
frequency. That was it if our MT neurologist was not going to get him
diagnosed I was going to load up and drive to Seattle until I got
answers. By now it was the middle of June before Archer was able to
receive medication. This particular medicine was a form of steroid
administered by shots in the leg for 30 days. Yes, momma was the one
poking her little 5 month old, precious baby boy, twice a day along with
4 other medications to counter-act the side effects. After 72 hours of
the shots the seizures stopped and have yet to return! He was so
uncomfortable, pumped full of medicine, he stopped smiling and laughing,
it was too uncomfortable to snuggle. These days seemed so long when I
marked out the 30-day dosage on the calendar. Holy moly those days are
gone and enough detail for you, yet this is really only the icing on
top. 
We again went to our magical place Maverick (btw, I wanted this to
be Archer's middle name, but Grandpa Orrin Jay won) over the 4th of July
holiday to get Archer out of the shocking fireworks, as we didn't want
anything to trigger the seizures beginning again. At camp we let the
little bug be nakey and take in the magic of nature, the sounds of
birds, the creaking trees, the fresh smell of the forest. He began to
giggle!! Our hearts were lifted and able to put the past into the past
and live in the moment. 
Fast forward to the last few weeks of March
2015, when the word about Archer spread like wild fire. Friends from far
away places, community members, the prayer chain began again and
uplifting Archer with the power of pray. Love is the most healing gift
you can give. These past few weeks his brain is showing us that the
connections and pathways are being forged. All in time it will come. He
decided to let us know that speech will not be an issue as his sweet
voice began praising the world with 'mamama'!! The picture at the left
is of him sitting up and away from back support. This is a big step for
our little guy as he has very low muscle tone and it takes a lot of
effort cognitively and physically to work together and hold himself up.
It is an eye opener to all the things that come so easily for some, are a
huge hurdle of others. May we all slow down and appreciate the small
treasures of life and each moment we have together and apart to spread
our love.