Archer's Journey

February 28th, 2023 is Rare Disease Day. Chances are it's rare that you know the date or significance of this day. Why, because it's rare that you or your loved ones are affected by a rare disease. A small percentage of us out here in the world know about the rare day. However the rare population that DO know about the day are fully aware. They may not all order their steaks rare, but they do have a rarity among them! While it's RARE that I share today, given I haven't in nearly 5 years. Even more rare is the day I choose to bring my voice back happens to be National Rare Disease Day, coincidence I think not!   Where in the world has Archer journeyed too? Well I should say, he has became quite a jay bird, rightfully so as any nine year old does and will, a strong will at that. He is finding out what a personality one can have! Jay birds are bold and known for their raucous manner. Archer has learned his voice gets him what he wants, any sounds, louder the better. More o...

Yesterday afternoon as I drove home from dropping Arch off at preschool a feeling of solitude wrapped me in joy. As the sun shined through my window, the silent air filled with solemn breath. I was alone! I slowly shifted down into second gear to make the final turn towards home and I smiled to myself, of the blissful moment that has been waiting its turn so patiently. Walking in the door I see the daily calendar. I'm a day late, so I pill off the paper to reveal the days message. It reads " Do you have the patience to wait until your mud settles and the water is clear? " Here I am folks, Hello, I've missed my words, but with good reason they went silent. It was the return of seizures that took my breath away. I thought we won that battle back in year one. This was hopeful thinking. Although I wash the medicine syringes twice daily, it seemed the days would come to an end. Instead the seizures returned, not with a vengeance like some children, with just enough of...

Life is instinctive and we have been wired to react; move quickly, do not delay. Well, delay, was introduced to my life a little over 3 years ago, and with that a world full of deprivation. Deprivation showed its face when my breast-fed child struggled to melt his gaze into me when intimately being nourished. The damaging lack of material benefits considered to be basic necessities in a society, deprived. The face, a considerably complex image to interpret for a child with cortical visual impairment. Inside these little dears’ skull, structures are lacking or have been damaged depriving the visual processing center and visual pathways of the brain. My son is unable to experience a sense of relief by visually capturing my face. When he needs a “security” check-in, the simple reassurance of finding my face is inaccessible to him. It is estimated 80 percent of what children learn comes to them through their vision. Archer does not learn by watching others. His world will neve...

One thing leads to another, right? We learn, and grow, and keep moving on up the ladder. These days even quicker, with more of an instant demand. Often times we are involved in varying accomplishments at any given time. With the revved up world we live in today children are being exposed to countless amounts of societal pressure, forcing a rapid rate of maturity. But what has this done for the greater good of our society? Time seems to no longer be on our side. Kindness and expression of genuine gratitude take too much time, and are been replaced with an extra emoticon! But how does the receiver interpret this, and do they have the extra time to read an instant message? We are peeled away from actively being present. The value of simply observing life unfold has been lost, as instant gratification has become the way of life.  Who has time to just sit back?  I do! Archer has given me the gift of time.  TO BE, to not do, but to be.  To be silent in my ow...

I write to you on this Monday, January 18, 2016, a day in observance of Martin Luther King. Brandon home, spending his day in service to us his family, giving tirelessly, allowing time for me to write, and manifest the message and sequence for my 2 evening yoga classes! A little over two years ago I had the opportunity to lead a movement, to provide service to a community for an entire year. I learned how to express my passion of giving to others, in others, and, how to inspire individuals to share their service in moments of kindness. The year was gratifying, it taught me how to gleam with diversity, to truly be authentic. My words are now a little gentler, my actions hold kindness, my thoughts pass less judgement, and my awareness is to actively be in the moment. I experienced my dreams, turn into reality. I single handedly owned and operated a wellness center beginning with an offering of small intimate classes focusing on arthritis exercise and diabetes prevention....