Archer's Journey

As many of you know the little prince has Cortical Visual Impairment (CVI). We consider this to be his greatest challenge in life.  Thankfully we when we set out on our journey, we found organizations making statements about the necessity of CVI. American Printing House for the Blind (APH) upholds the following statement, produced in 2008 on CVI. "Children who have Cortical Visual Impairment (CVI) require educational supports that are equal to those who are considered to be blind or visually impaired." When assessing how to propel him forward in life we quickly understood it comes down to LITERACY. He is happy to simply move around his world by feeling, smelling, and listening, BUT THEN the frustrations set in. He has vision, and he needs assistance to guide him into accessing his visual world. This BEGINS with building his literacy skills. We use approaches researched and developed by Dr. Christine Roman-Lantzy. We have changed the way we interact and have learned

I have been branching out in my advocacy efforts and what I have learned is MOMS, yes MOMS, we are the ones whom wake up with premature wrinkles because we unfortunately not only live it, but we dream about IEP's. And this is why I wake with spry grey hairs.  I took some time to share our story, focusing on the impact of the diagnosis of Cortical Visual Impairment. Check it out if you haven't already! https://cvimomifesto.com/2018/01/22/moms-on-monday-11-cheyanne-from-nv/

We have a 4 year old boy! He loves to be happy, don’t we all right? Archer’s vocabulary has begun to expand exponentially. He chooses to express words with great intonation. Awesome, cool, and Wow are a few of his favorite words, along with soccer ball, and "play rocks". His new favorite actions are to stand at the door and with slight demand say, “open door handle!” I knew, all in time we’d be blessed with his spoken language. A few words where there, but lingered for months. What did it? Being around his peers speaking at preschool. This provided him the experience needed to synthesize his own spoken language. Hello, language neurons, thank you for sparking and connecting.    Ha-PPY, is a feeling Archer understands, and will be quick to express if the situation presents itself. As a parent of a child with challenges, introductions can be tough and stir-up several emotions. I choose to explain how he loves music, being outdoors, and getting dirty. He can count